The DEFY Foundation was founded in October 2014 by Emma Yasick and Justin Borreggine, after Vascular Ehlers-Danlos Syndrome (VEDS) tragically took the lives of Emma’s father and brother. DEFY exists in order to raise awareness about VEDS as a disease, and to raise funds for research towards treatment and a cure. The organization raised over $40,000 in its inaugural year, and continues hosting fundraising events around its local community.
​To view the full design of the DEFY Foundation’s website, and to learn more about the organization, please visit www.defy-foundation.org. Donations are greatly appreciated and can be made through PayPal.
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2017 DEFY Foundation newsletter